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Tragic Ayden Cochrane, 13, loses cystic fibrosis battle just days after new 'wonder drug' hope

Tragic Ayden Cochrane, 13, loses cystic fibrosis battle just days after new 'wonder drug' hope A Scots schoolboy has tragically lost his battle with cystic fibrosis just days after his family won a fight to access a drug which they believed could have helped save his life.  Ayden Cochrane sadly passed away just days after being given new hope when he was granted Trikafta by manufacturer Vertex, despite it not being licensed in Europe and unavailable on the NHS.  The 13-year-old had begged the firm to give him the medicine on compassionate grounds.  Ayden's condition declined on Sunday with doctors placing him on a ventilator, the day after the Cochranes shared the news that he would be offered the drug.  But his family today took to social media to announce the tragic news that he has 'gained his wings' after losing his battle.  In a heartbreaking post on Facebook, they wrote: "If loved could have saved you, you would have lived forever Ayden.  "I'm absolutely devastated but our precious boy was too tired for this world and has gained his wings.  "We know how many people loved Ayden he was an absolute warrior but he got tired and now he's at peace and pain free.  "We are without our son for just now but we will see you again."  Ayden had been at such an advanced stage of illness that two weeks ago he had to discuss his end-of-life care as his mum Tracey, 33, penned a desperate plea to US drug firm Vertex to save her “wonderful boy”.  Trikafta, dubbed by Vertex as “almost a cure”, can’t be prescribed by UK doctors as it hasn’t been granted an EU licence. The only way sufferers can get it is if Vertex provide it under a compassionate-use scheme.  On January 18, the family posted on their official Facebook page, Ayden's Journey: "Last night was a hard night, at 11pm we were asked to consider withdrawing Aydens support as it didn't look like he was going to make it through the night.  "I think for a long time we have tried to prepared for this but you can never be prepared.  "After a difficult few hours we had a phone call from Ayden's consultant to say Vertex had phoned her and they have said yes!  "Vertex have agreed to give Ayden Trikafta on compassionate use."  We previously told how brave Rangers fan Ayden, of Johnstone, Renfrewshire, would "give anything" to play his beloved football again and see his siblings start school.  Speaking from his hospital bed, he pleaded: “Please give me Trikafta and let me have the chance to live.  “Right now, it feels like I am suffocating in my own body and I’m trying really hard.  “I would give anything to be able to kick a football around again and it would mean everything to me to be able to see my wee brother and sister start school."  Tributes to the youngster poured in on the family’s " Aydens journey " Facebook page after the tragic news of his passing was announced.  Lauren Halligan said: “My heart is broken for all of you. Poor Ayden fought for as long as he could but he was tired and wanted to close his beautiful eyes and finally sleep without pain and you guys as parents done anything and

Cystic Fibrosis,

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